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Alan's Story

Ethnicity
White British
Age
70-79
Work
Retired
Sexual Orientation
Straight
Geography
South East
Relationship status
Married/In a Civil Partnership
Listen

Hormone Therapy (injections and relugolix tablets)

Tips and advice for any physical side effects of treatment

I took up two hours a week gym work with a personal trainer - never used a gym before! Helped with the inevitable muscle loss. Also I do around 2 miles of brisk walking on 3 days a week and usually a 4 mile hike once a week. I eat just two meals a day and try to eat sensibly when at home. Unsuccessfully try not to drink alcohol if not going out! Thus have managed to keep my weight down.

How this treatment impacted my life the most

The surgery went well but unfortunately the cancer had spread to my lymph nodes. I tolerated well the subsequent chemo. The injected hormone therapy is tolerable as are the usual side effects. Although I dislike my slightly fatter left leg (25 infected lymph nodes were removed during surgery) I generally manage the lymphoedema in my left leg with a compression stocking. My penis and testicles have shrunk significantly which is sad but I knew it would happen so it is as it is. By far the very worst aspect is as I approach the time to have my 3 monthly psa blood test. The stress is simply awful!! But there is no alternative. After 5+ years of post operative hormone therapy I realise my psa (after being undetectable for 5+ years) will almost certainly start to climb and I will have to try some new type of treatment. I get a bit ratty at this point!! But the relief following a good result is wonderful!! But next time????

If I had to do it all over again, would I choose the same treatment?

Yes

Why did I give this answer?

When I had the surgery the prior MRI scan suggested that the cancer was contained when it wasn’t. But I am still glad I had the radical prostatectomy because it seems to me a good idea to get rid of the mass of tumour from my body even if micro deposits of cancer remain in my lymph system.

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