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Chris's Story

Ethnicity
White British
Age
70-79
Work
Retired
Sexual Orientation
Straight
Geography
South West
Relationship status
Married/In a Civil Partnership
Listen

Radiotherapy

Tips and advice for any bladder or bowel side effects of treatment

Consult your GP/Specialist nurse immediately. I did and that led to hormone injections plus 37 doses of external beam radiotherapy in May 2012. I accepted that this may make me impotent and incontinent but that sounded better than the alternative! What I didn't expect, which was only discovered much later was that the radiotherapy had damaged the bladder, which is now paralysed and the cancer spread to the bladder causing a tumour which had to be removed.

Tips and advice for any sexual side effects of treatment

I was rendered completely impotent and unable to get an erection, so it wasn't so much not being interested in having sex, I was incapable of doing so. Both my wife and I appreciated that there was no alternative and discussed ways in which we could enhance our lives which did not include a sexual relationship.

Tips and advice for any physical side effects of treatment

I had to regulate my diet to help with keeping my weight to a manageable level and take a lot of exercise by playing golf, walking and using a local gym. I consulted my specialist nurse regarding the hot sweats and she got a course of Cyproterone Acetate prescribed which helped for a couple of years and then had to be repeated.

Tips and advice for any mental and emotional side effects of treatment

I found it very frustrating and annoyed at suffering from these side effects. However, I found it helped to discuss my feelings with my wife and the specialist nurse plus other men with similar problems.

How this treatment impacted my life the most

Most of the answers given in this format relate to the initial treatments of hormone treatment, the TURP operation and radiotherapy that I had in 2011 and 2012. However, the cancer subsequently spread to my bladder and ureter which resulted in a trans urethra (TURBT) operation to remove a tumour and insert a stent in the left ureter. The diagnosis following that operation was Gleason 4 + 4=8 T4 N1. I am currently recovering from a Gastrectomy as the cancer has spread to my stomach. So, over the years from 2011 till now my life has been severely impacted with over 80 appointments. It is therefore difficult to identify identify any one treatment/side affect that has impacted most. However, the most inconvenient side effect is the incontinence coupled with the paralysed bladder as treatments such as artificial sphincter, botox, permanent catheter etc are not suitable. Therefore I have to wear a conveen and urine bag, which needs to be changed daily, is sometimes unreliable and when it is, can cause extreme embarrassment.

If I had to do it all over again, would I choose the same treatment?

Not sure

Why did I give this answer?

I presented to my GP with symptoms about two years before I was finally sent for a biopsy, by which time the cancer was locally advanced. Had I been diagnosed earlier before it had spread I would have opted for radical surgery in the form of a prostatectomy.

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