I had not expected this degree of tiredness and deconditioning
Very time consuming- 28 chemo clinic visits over 2 years. Marked tiredness after each dose.
Yes
It was manageable, I really would not have liked surgery and overall I felt I was able to live my best life. I stopped all treatment 10 years ago and my quality of life is now very good indeed.
We’ll it was part of a clinical trial…
Very exhausting
Yes
No choice really, presenting PSA. WAS 330 and my MRI looked like a horror show
Grin and bear it
Felt completely deconditioned , tired, had to come to terms with being a eunuch while on treatment. Put on masses of weight
Yes
After 2 years I put on so much weight I developed diabetes and we decided to stop hormone therapy. I lost the weight, the diabetes went fully away and I have stayed in full remission off treatment for more than 10 years - and am no longer a eunuch.
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