Hugh's Story

White British
Relationship status

Tips and advice for any bladder or bowel side effects of treatment

I had radiotherapy in December and was unlucky that was in a lot of pain towards end of treatment. However it was Christmas holiday so was only when returned to treatment after holiday that specialist nurse in the hospital) diagnosed that prostate had swollen and blocked urethra, could not pee. Prescribed pills, big relief. I should have called the helpline they gave me rather than suffering.

Tips and advice for any sexual side effects of treatment

I don’t have a sexual partner so not a problem for now. Just noticeable ho much smaller my testicles are, probably thanks to, hormone treatment.

How this treatment impacted my life the most

This survey doesn’t seem to allow for assessing multiple treatments, in my case hormone injections, tablets and radiotherapy. The radiotherapy was pretty gruelling, I live alone, travelled to hospital alone. Used train, was handy as urgency a problem. During rail strikes I had to drive an plan pee stops as best I coukd. Nice group of fellow patients at radiotherapy and we all encouraged each other, big help. At end of treatment my daughter organised family gathering and celebration butnI blew it by drinking too much and upsetting folk. It had all just caught up with me so be warned! I’m on jags and tablets for 2 years, half way through now. I get bloods every 4 weeks now and call from specialist nurse or pharmacist every 3 months when new  prescription due. , Was bloods every 2 weeks and call every month but as doing well, no side effects from, the tablets, they have relaxed timings. I have suffered fatigue but just need to listen to body and rest when required. Have lost chest hair, got mini breasts but nothing dramatic. Very active again now, walking a lot and golfing. I’m very lucky that I went to GP in April 2022 after saw PCUK video on Facebook with Stephen Fry urging folk to get checked if family history - my brother had. Inhad no symptoms, doc referred me without waiting for bloods results as DRE showed prostate hard and lumpy. PSA came back about 60. In next few weeks had biopsy, CT scan, MRI and bone scan. Saw specialist nurse for positive diagnosis results after biopsy then Oncologist in August. Cancer had spread to,seminal vesicles and probably lymph nodes. Surgery therefore not sufficient. I have been very fortunate with the joined up healthcare I have had, the speed of diagnosis and treatment and the fact that PCUK gave me a nudge. I am doing what I can to help their campaigns and encourage men to get checked.

If I had to do it all over again, would I choose the same treatment?


Why did I give this answer?

I was told by oncologist tha radiotherapy and hormone treatment only option so that made it easy.

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