Phil's Story

Ethnicity
White British
Age
60-69
Work
Retired
Sexual Orientation
Straight
Geography
South East
Relationship status
Married/In a Civil Partnership

Tips and advice for any mental and emotional side effects of treatment

Good to have support - mine was from my family

How this treatment impacted my life the most

This treatment followed chemo and was based on the STAMPEDE trial results. It was early on in my treatment cycle (I've had 2 more courses of radiotherapy since and 1 more course of chemo). Impact was minimal at this stage.

If I had to do it all over again, would I choose the same treatment?

Yes

Why did I give this answer?

As it was early in the treatment cycle, impact was minimal

How this treatment impacted my life the most

Chemo was delivered shortly after being diagnosed. Impact was minimal. I had a second course of chemo in 2023 (5 years later). Impact was greater with second course as I was less fit, etc. and the fatigue was greater

If I had to do it all over again, would I choose the same treatment?

Yes

Why did I give this answer?

Any treatment that may reduce the cancer in my view was worth having.

Tips and advice for any bladder or bowel side effects of treatment

I've ended up with a catheter as I had a lot of urine retention. Took a bit of time getting used to it but had it in for about a year now.

Tips and advice for any sexual side effects of treatment

It was worrying but there are other ways to to feel close to your partner

Tips and advice for any physical side effects of treatment

Fatigue was the biggest problem as I'd been really active. I'm still very active but find I almost have to force myself to do activities. But....... need to keep going and be positive

How this treatment impacted my life the most

The side effects weren't meant to be that bad but I found I suffered quite a bit, fatigue mainly and only managed to complete 4 of the 6 sessions

If I had to do it all over again, would I choose the same treatment?

Yes

Why did I give this answer?

I think I got some benefit from the treatment

How this treatment impacted my life the most

The Enzalutimide worked really well and kept the PSA down for quite a while.

If I had to do it all over again, would I choose the same treatment?

Yes

Why did I give this answer?

Treatment worked well

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