Skip to main content
Site logo linking the user to the homepage Site logo linking the user to the homepage

Trevor's Story

Ethnicity
White British
Age
70-79
Work
Retired
Sexual Orientation
Straight
Geography
South West
Relationship status
Married/In a Civil Partnership
Listen

Hormone Therapy (injections and relugolix tablets)

Tips and advice for any bladder or bowel side effects of treatment

My urine blocked altogether in 11/22 so they fitted a catheter.

Tips and advice for any sexual side effects of treatment

Still not sure what is going to happen.

Tips and advice for any physical side effects of treatment

Had a few swollen places and skin problems but nothing worrying.

Lost a lot of weight. 91 Kgs down to 68 Kgs. Broken bones not helping me get about.

Tips and advice for any mental and emotional side effects of treatment

Got to face it, try to do what you can and enjoy what time you have left as otherwise you are just wasting what time you do have.

How this treatment impacted my life the most

The treatments were changed after the specialist told me I had months rather than years to live. I have two tablets every 24 hours on low pain relief. 2 tablets at 09.00 to try to hold the cancer in the bones from spreading and a tablet of calcium and vitamin D to suck to strengthen bones. Then during the day I can have pain killers at 09.00, 013.00, 017.00 and 21.00 but now have it down to 21.00 only. Then one small tablet at 21.00, 2 small tablets at 21.45, an calcium and vitamin D as well, then two tablets to make me go to the toilet plus 2 to soften. Then I take 40 billion bacteria, 375 mg of magnesium and a gram of collagen per day and I have felt much better being able to walk 100 metres and stand to shave

The pain killers have helped a lot although they make me feel like an old man. The treatment have caused me constipation and it is painful spending over 4 hours on the loo. Otherwise I have not had too many problems.

If I had to do it all over again, would I choose the same treatment?

Yes

Why did I give this answer?

Because I am feeling so much better and the specialist reckons I could last up to a year now

Certainly better than cheimo which is a thing I do not want unless I have to.

Share your story with others

By sharing your experience of prostate cancer on the infopool you can help others. Your experience is valuable as they go through their own journey. Help make the prostate cancer community stronger.

Share story

Prostate Cancer Research logo
  • Privacy
  • Terms
  • Policies
  • Contact us
  • About infopool
  • Accessibility statement
  • Info for HCPs

Prostate Cancer Research 

Suite 2, 23-24 Great James Street, 

London WC1 3ES

Facebook Instagram Twitter LinkedIn Youtube

Copyright 2025, All rights reserved. Registered Charity No: 1156027 

Site design by IE Digital

Main navigation
  • Home
  • Testing and Diagnosis
    • Prostate and you
    • Explore Diagnostics
    • Testing and diagnosis tool
    • Grading and Staging
    • Find services near me
    • Prostate Biopsy
    • Prostate Specific Antigen (PSA)
  • Treatment and Care
    • Cancer Waiting Time Standards
    • Explore Treatments
    • Understand treatment choices
    • Prostate cancer treatment information webinars
    • Shared Decision Making
    • Palliative (supportive) care
    • End-of-life care
    • Mastering healthcare conversations
  • Stories
    • Share your story
    • Patient stories
    • Partners & carers
    • Living with side effects
  • Side Effects
    • Getting support for long-term effects of hormone therapy
    • Living with side effects
    • Emotional and Psychological Support
    • Getting support for peeing problems
    • Managing hot sweats and fatigue with hormone therapy
    • Getting support for sexual problems
    • Late effects of radiotherapy treatment
  • Partners and Carers
    • Partners and Carers
  • Research and Trials
    • Find clinical trials near me
    • Join Prostate Progress
Donate
User account menu
  • Log in
Powered by Prostate Cancer Research Prostate Cancer Research Logo