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Mark's Story

Ethnicity
White British
Age
50-59
Work
Other (please specify)
Sexual Orientation
Straight
Geography
East Midlands
Relationship status
Married/In a Civil Partnership
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Radical Prostatectomy (Surgery)

Tips and advice for any bladder or bowel side effects of treatment

Due to some scar tissue build up, I have to self catheterise each day in order to maintain an acceptable flow, … but honestly after a few months it becomes normal and I don’t even see it as a problem now, it’s just what I have to do, in the same way you clean your teeth every day… it’s just a daily function and not a bad as it sounds.

Tips and advice for any sexual side effects of treatment

I started with viagra type tablets, but they didn’t really work so I moved to injections which worked and again, not as bad as it sounds, you just get used to it!

Tips and advice for any mental and emotional side effects of treatment

Really struggled to get over the diagnosis and subsequent operation, I would spend hours thinking about death and expecting it to come back, caused issues at work, and when the cancer did come back, i struggled to the point I had to pack in work, as I couldn’t concentrate properly and meant I couldn’t do my job properly.

How this treatment impacted my life the most

Forced me to stop working, which I didn’t want to.

If I had to do it all over again, would I choose the same treatment?

Yes

Why did I give this answer?

Because at the time I believed I couldn’t live with cancer inside me, and thought that was the way to go….. and still do despite the consequences.

Radiotherapy

Tips and advice for any physical side effects of treatment

Radiotherapy was advised when the cancer returned following the removal of the prostate, 33 daily sessions, which actually wasn’t that bad to deal with … unfortunately it didn’t work.

How this treatment impacted my life the most

Just the daily impact of having to go to hospital every day for a couple of months, a bit draining, but acceptable.

If I had to do it all over again, would I choose the same treatment?

No

Why did I give this answer?

Only because it didn’t work, but if I thought it might work, I would do it again.

Hormone Therapy (injections and relugolix tablets)

Tips and advice for any sexual side effects of treatment

The hormone treatment did have significant affect on the sex side, as in penis and testicles shrink , and a total loss of sexual desire, which has an impact on my wife. And whilst she has been very understanding it still has an effect on my mental health when trying to deal with its impact on the both of us.

Tips and advice for any physical side effects of treatment

The sweats were a major problem for me, 12-20 a day , eventually after a year I managed to get some other drug which has almost stopped the sweats. And now I can operate and tolerate the other side effects .

How this treatment impacted my life the most

Whilst this treatment has had the most side effects and impacted heavily on my relationship with my wife, the up side is that it’s this treatment that currently has gained control of my cancer, it’s no longer growing and no longer dividing , so whilst it’s been a long 4 years where at times it seemed like it was always bad news, there has always been another treatment to try , and now probably for the first time since diagnosis, I feel happy and relatively good about my future…. Just got hang in there and take it one step at a time!

If I had to do it all over again, would I choose the same treatment?

Yes

Why did I give this answer?

Because it’s currently working!

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